The materials in this section are provided for use by your organization and the patients you represent. Please feel free to use these resources to help educate your patients, prepare them for the decisions they will make during their treatment journey and empower them to find the best care possible.
Getting heard in advocacy

Getting heard in advocacy

Getting heard over the noise of more well-known, well-understood disease ar ...
Changing the face of stomach cancer trials

Changing the face of stomach cancer trials

An estimated 10,000 Americans died from gastric cancer in 2015, yet just 0 ...
Advocacy on film: Providing a YouTube education

Advocacy on film: Providing a YouTube education

An estimated 175,000 men will be diagnosed with prostate cancer in the US t ...
Thinking outside the box to engage prostate cancer patients

Thinking outside the box to engage prostate cancer patients

“You have to think outside the box, says Alexandra Scholz, Chief Executiv ...
Advocacy ‘crucial’ to future of rare disease

Advocacy ‘crucial’ to future of rare disease

As understanding of rare disease advances at an ever-increasing rate, it’ ...
HealthyWomen and WebMD launch national initiative to reveal unmet women’s health concerns

HealthyWomen and WebMD launch national initiative to reveal unmet women’s health concerns

While women and their healthcare providers know more about mid-life health ...
NORD 2019: Supporting each other through rare disease

NORD 2019: Supporting each other through rare disease

Delegates at a meeting of the National Organization for Rare Disorders (NOR ...
Spreading the word up to and beyond prostate cancer awareness month

Spreading the word up to and beyond prostate cancer awareness month

Prostate Cancer Awareness Month promised to shine a light on the issue – ...
‘We’re just $1bn away from defeating prostate cancer’

‘We’re just $1bn away from defeating prostate cancer’

“We believe we’re no more than $1billion away from defeating prostate c ...
Harness the power of celebrity to spread the patient advocacy message

Harness the power of celebrity to spread the patient advocacy message

When it comes to getting noticed in the 21st century, patient advocacy grou ...
Developing a cancer survivorship program for care partners: Five considerations

Developing a cancer survivorship program for care partners: Five considerations

New treatments and interventions mean more and more people are surviving ca ...
Developing a cancer survivorship program for patients: Five considerations

Developing a cancer survivorship program for patients: Five considerations

Rapid advances in our understanding and treatment of cancers mean more peop ...
Cut unhealthy behaviors to reduce cancer mortality by one third

Cut unhealthy behaviors to reduce cancer mortality by one third

Policymakers, the medical community and society at large need to come toget ...
Time to rethink the patient experience conversation

Time to rethink the patient experience conversation

Improving patient experience takes a whole system approach that blends “t ...
Organizations gather for cancer natural disaster preparedness and response program

Organizations gather for cancer natural disaster preparedness and response program

Helping people with cancer cope with their disease and continue their treat ...
ASCO 2019: Top picks for cancer patient advocates

ASCO 2019: Top picks for cancer patient advocates

Oncology experts from around the world flocked to Chicago to share the late ...
Simple interventions boost patient understanding and experience

Simple interventions boost patient understanding and experience

Simple interventions to aid understanding can help reduce anxiety and fear ...
Celebrities ask black community to talk prostate cancer this Men’s Health Month

Celebrities ask black community to talk prostate cancer this Men’s Health Month

This Men’s Health Month, celebrity voices have been harnessed to amplify ...
Reimagine life with cancer, says CaLM approach to cancer care

Reimagine life with cancer, says CaLM approach to cancer care

A new model of person-centered cancer care promises to give patients and th ...
ASCO’s top tips for social media patient advocacy

ASCO’s top tips for social media patient advocacy

Social media offers a wealth of opportunities for patient advocacy groups t ...
C3 Prize is back to help change cancer care

C3 Prize is back to help change cancer care

Entries are now open for the 2019 Astellas Oncology Changing Cancer Care (C ...
Tooth loss and gum disease linked to pancreatic cancer in black women

Tooth loss and gum disease linked to pancreatic cancer in black women

The claim Poorer oral health may contribute to a higher incidence of pancre ...
National effort to boost clinical trials awareness

National effort to boost clinical trials awareness

Successful drug development isn’t possible without successful clinical tr ...
How is the rise of health influencers changing patient advocacy groups?

How is the rise of health influencers changing patient advocacy groups?

Social media and the internet have given rise to a new breed of “health i ...
Huge database will speed journey to personalized medicine

Huge database will speed journey to personalized medicine

Almost 200,000 people have already signed up to a new research program that ...
Greater focus on cancer survivorship is needed

Greater focus on cancer survivorship is needed

The medical community has “failed to study and address the psychological, ...
New tool offers roadmap to better patient experience

New tool offers roadmap to better patient experience

A new initiative will help healthcare providers analyze and improve patient ...
High-fat diet thickens the cells of the arteries

High-fat diet thickens the cells of the arteries

The claim A high-fat diet contributes to atherosclerosis by thickening arte ...
Could genomics improve pancreatic cancer outcomes?

Could genomics improve pancreatic cancer outcomes?

Routine genetic profiling in pancreatic cancer could save lives by matching ...
Young women worry more about depression than heart disease

Young women worry more about depression than heart disease

Young women are more worried about depression and anxiety than they are abo ...
Research rundown: site of care impacts palliative care cancer health disparities

Research rundown: site of care impacts palliative care cancer health disparities

The claim People with metastatic cancer treated at hospitals that primarily ...
People in poor areas of the US more likely to die from preventable cancer

People in poor areas of the US more likely to die from preventable cancer

While more people are surviving cancer than ever before, not everyone is be ...
Primary care should routinely screen older women for urinary leakage

Primary care should routinely screen older women for urinary leakage

Primary care doctors should consider asking all older female patients about ...
The National Organization for Rare Disorders asks people to show their stripes for Rare Disease Day

The National Organization for Rare Disorders asks people to show their stripes for Rare Disease Day

This year’s global Rare Disease Day, on February 28, focuses on the chall ...
Research rundown: computers can predict best chemotherapy choice

Research rundown: computers can predict best chemotherapy choice

The claim  An open-source machine learning algorithm can predict an indivi ...
Event helps Astellas staff understand the patient and caregiver journey

Event helps Astellas staff understand the patient and caregiver journey

The power of stories was given center stage at an Astellas event designed t ...
Astellas staff learn from personal caregiver experiences

Astellas staff learn from personal caregiver experiences

Poor health doesn’t occur in a vacuum – a diagnosis can turn loved ones ...
Personal stories highlight patient and caregiver needs at Astellas Patient and Caregiver Event

Personal stories highlight patient and caregiver needs at Astellas Patient and Caregiver Event

Three Astellas employees shared their personal stories of facing illness, a ...
2018 in review: a year in patient advocacy

2018 in review: a year in patient advocacy

Raising awareness and helping to change the law, ensuring people can access ...
Summit to foster industry and patient group collaboration

Summit to foster industry and patient group collaboration

Industry and advocacy groups came together to foster collaboration on a sha ...
Patient centricity survey finds disparity in perception and reality

Patient centricity survey finds disparity in perception and reality

Survey finds that while people believe in the importance of pharma deliveri ...
Caregiver Action Network: supporting the family caregiver journey

Caregiver Action Network: supporting the family caregiver journey

The biggest barrier to advocating for family caregivers is getting them to ...
Research rundown: nanoparticles a cancer imaging game changer

Research rundown: nanoparticles a cancer imaging game changer

The claim  Imaging nanoparticles that give off light under a low-power las ...
Research rundown: team science could put “progress on steroids”

Research rundown: team science could put “progress on steroids”

The claim  The Human Genome Project (HGP) has accelerated scientific advan ...
Older age among barriers to patient portal use, poll finds

Older age among barriers to patient portal use, poll finds

A nationwide survey found that being age 65 or older was a barrier to patie ...
Astellas advocacy meeting discusses how to embed true shared decision making

Astellas advocacy meeting discusses how to embed true shared decision making

Shared decision making was the focus of a recent breakfast meeting for advo ...
Transparency of research results will increase participation in clinical trials

Transparency of research results will increase participation in clinical trials

Sharing research test results with trial volunteers could boost levels of t ...
Clinicians as decision-making navigators

Clinicians as decision-making navigators

Clinicians need to be ready and willing to help patients navigate their dec ...
Mind your language – the power of words in healthcare

Mind your language – the power of words in healthcare

Innovation isn’t always about new technologies and medicines – it can b ...
Barriers to women’s health in the United States

Barriers to women’s health in the United States

Women’s health in the United States needs to be better supported, accordi ...
Empowering people to make informed decisions about their health

Empowering people to make informed decisions about their health

The more people understand clinical research the more empowered they will f ...
How can patients be more involved in their treatment decision making?

How can patients be more involved in their treatment decision making?

Education is a big part of shared decision making (SDM) – but it’s by n ...
More than 500 neurology medicines in development

More than 500 neurology medicines in development

More than 500 medicines for neurological disorders are currently in develop ...
Thousands wear blue to bring men’s health to the public’s attention

Thousands wear blue to bring men’s health to the public’s attention

The best gift any man can give his family is his good health – that was t ...
Looking to the future with the Astellas Stakeholder Engagement Team

Looking to the future with the Astellas Stakeholder Engagement Team

The Stakeholder Engagement function at Astellas has seen some changes in th ...
Relaunched We Work For Health website reveals biopharmaceutical industry’s economic and community impact

Relaunched We Work For Health website reveals biopharmaceutical industry’s economic and community impact

A new website collates data on the industry’s economic and community impa ...
Digital Sherpas guiding older patients to health literacy

Digital Sherpas guiding older patients to health literacy

A simple idea to enhance technology skills is having a massive impact on a ...
Barbara Bush – the very definition of advocacy

Barbara Bush – the very definition of advocacy

Much-loved advocate, campaigner and former first lady Barbara Bush was lai ...
Research rundown: how bucket lists can help healthcare decision making

Research rundown: how bucket lists can help healthcare decision making

The claim A “bucket list” can be a starting point to helping people wit ...
Working together to ensure the patient voice is heard throughout Astellas

Working together to ensure the patient voice is heard throughout Astellas

Improving health literacy and making clinical trial information easier to a ...
Make sure your voice is heard this Rare Disease Day

Make sure your voice is heard this Rare Disease Day

If we all do just one thing to mark Rare Disease Day, we will be one step c ...
The RAISE Family Caregivers Act brings hope to millions of Americans

The RAISE Family Caregivers Act brings hope to millions of Americans

Collaboration and bipartisan support have culminated in hope for the 90 mil ...
Research rundown: improving quality of life for people with rare diseases

Research rundown: improving quality of life for people with rare diseases

The claim Support and advocacy groups could significantly increase quality ...
Research rundown: turning your smartphone into a microscope

Research rundown: turning your smartphone into a microscope

The claim Scientists have released an open-source how-to guide which will a ...
The challenges and opportunities for advocacy groups working together

The challenges and opportunities for advocacy groups working together

The opinions expressed in this webinar are those of the guest panelists and ...
The power of collaboration for improving patient care

The power of collaboration for improving patient care

The opinions expressed in this article are those of the guest panelists and ...
ON DEMAND WEBINAR: Driving positive change for patients through collaboration and education

ON DEMAND WEBINAR: Driving positive change for patients through collaboration and education

The opinions expressed in this webinar are those of the guest panelists and ...
Research rundown: How to get patients to share electronic health records

Research rundown: How to get patients to share electronic health records

The claim  Healthcare professionals need to address patients’ privacy co ...
2017 in review: stories of inspiration

2017 in review: stories of inspiration

From hiking in the dark to changing laws, it’s been a fantastic year for ...
The Astellas C3 Prize – going beyond treatment to address real unmet needs for patients living with cancer

The Astellas C3 Prize – going beyond treatment to address real unmet needs for patients living with cancer

Cancer rates are growing at an alarming pace around the world, with the lat ...
Research rundown: survey of older US adults shows few speaking to their doctor about possible drug interactions

Research rundown: survey of older US adults shows few speaking to their doctor about possible drug interactions

The claim Only a third of older Americans who take at least one prescriptio ...
Giving advocacy groups a platform to engage – the 2017 BIO Patient & Health Advocacy Summit

Giving advocacy groups a platform to engage – the 2017 BIO Patient & Health Advocacy Summit

Patients’ access to new medicines and cutting-edge drug research developm ...
Research rundown: Clinical trial discussion should be part of standard of care

Research rundown: Clinical trial discussion should be part of standard of care

The objective To gauge public opinion of whether clinical trials should be ...
Research rundown: digestible capsules could solve poor medication adherence

Research rundown: digestible capsules could solve poor medication adherence

The claim New hydrogel-based capsules that remain in the gastrointestinal t ...
Research rundown: poor health literacy can lead to more emergency department visits

Research rundown: poor health literacy can lead to more emergency department visits

The claim Poor health literacy increases the risk of preventable emergency ...
ProgressForPatients.org: equipping advocates with the knowledge and tools to instigate change

ProgressForPatients.org: equipping advocates with the knowledge and tools to instigate change

Understanding patient needs is crucial to the advancement of more patient-c ...
Improving health literacy for better patient outcomes

Improving health literacy for better patient outcomes

Understanding today’s medicines, with their complex modes of action and p ...
Elevating the patient voice: the 2017 BIO Patient Advocacy Pavilion

Elevating the patient voice: the 2017 BIO Patient Advocacy Pavilion

The growing interest in patient advocacy from the biotechnology industry wa ...
Patient-reported outcomes and where patient advocacy groups can help

Patient-reported outcomes and where patient advocacy groups can help

As healthcare becomes more patient-centric and value-based – demanding a ...
Amplifying the patient voice to improve healthcare quality

Amplifying the patient voice to improve healthcare quality

How do we capture the patient voice to shape the future of care in the U.S. ...
Be inspired once more: the Astellas Oncology C3 Prize returns for a second year

Be inspired once more: the Astellas Oncology C3 Prize returns for a second year

Although patients today can access more resources and tools than ever befor ...
Time to save clinical research?

Time to save clinical research?

Clinical trials are the driving force behind developing new medicines and m ...
It's time to talk about men’s health

It’s time to talk about men’s health

Despite huge progress in patient advocacy and awareness programs, men’s h ...
Clinical trials drive scientific breakthroughs – but not without volunteers

Clinical trials drive scientific breakthroughs – but not without volunteers

Clinical trials are a vital component in the discovery and development of n ...
The importance of patients in the development of new medicines

The importance of patients in the development of new medicines

As our knowledge of the way the human body works in a normal and disease st ...
Research rundown: lab on a chip technology could revolutionize disease diagnosis and clinical research

Research rundown: lab on a chip technology could revolutionize disease diagnosis and clinical research

The claim A group of researchers at the Stanford University School of Medic ...
Upcoming patient-focused sarcopenia meeting will let patients inform the development of new medicines

Upcoming patient-focused sarcopenia meeting will let patients inform the development of new medicines

The U.S. Food and Drug Administration (FDA) is conducting a series of Patie ...
Research rundown: conditional cell reprogramming has the potential to change medicine and research

Research rundown: conditional cell reprogramming has the potential to change medicine and research

The claim A new technique of cell culturing could revolutionize healthcare. ...
Bernie Zeiher, Astellas President of Development, discusses the importance of biomarkers

Bernie Zeiher, Astellas President of Development, discusses the importance of biomarkers

Dr. Bernie Zeiher, Astellas President of Development, explains in a new ser ...
Encouraging collaboration to speed up the discovery of new treatments

Encouraging collaboration to speed up the discovery of new treatments

In 2009, FasterCures, a center of the Milken Institute dedicated to speedin ...
Facilitating decision making for better, more informed patient choices

Facilitating decision making for better, more informed patient choices

Making decisions is a process everyone goes through every day of their live ...
The importance of going beyond the medicine in healthcare

The importance of going beyond the medicine in healthcare

When the American Cancer Society Cancer Action Network conducted a national ...
Bernie Zeiher, Astellas President of Development, on his unwavering optimism for the future of medicine

Bernie Zeiher, Astellas President of Development, on his unwavering optimism for the future of medicine

When Astellas’ President of Global Development, Dr. Bernie Zeiher, was in ...
Addressing the issue of patient treatment access in Latin America

Addressing the issue of patient treatment access in Latin America

The Global Alliance for Patient Access (GAfPA) is the international arm of ...
Changing the way Astellas works with patients through the Early-Stage Pipeline ‘Playbook’

Changing the way Astellas works with patients through the Early-Stage Pipeline ‘Playbook’

Astellas has taken a significant stride to formalize the way in which it bu ...
Spotlight on SMA Awareness Month

Spotlight on SMA Awareness Month

Each August, the spinal muscular atrophy community marks SMA Awareness Mont ...
Research rundown: artificial intelligence could revolutionize medicine

Research rundown: artificial intelligence could revolutionize medicine

The claim Artificial Intelligence (AI) could lead to an era of precision me ...
Breaking down barriers in men’s health

Breaking down barriers in men’s health

Founded in 1992, Men’s Health Network (MHN) was the initiator of a weeklo ...
Patient insight into peripheral neuropathy aids drug research

Patient insight into peripheral neuropathy aids drug research

A patient’s personal insight into their life with peripheral neuropathy r ...
We’re Change Together

We’re Change Together

At Astellas, our mission is to contribute towards improving the health of p ...
Second annual patient summit promotes collaboration to improve patient care

Second annual patient summit promotes collaboration to improve patient care

Astellas is excited to host its second annual patient advocacy summit in Wa ...
Step therapy

Step therapy

What is step therapy and how does it impact patient care? Find out more abo ...
Spotlight on Cure SMA

Spotlight on Cure SMA

Despite the numerous challenges of bringing a new rare disease treatment th ...