Understanding patient needs is crucial to the advancement of more patient-centric, valuable care. But gathering these insights is only part of the battle for this change – patient values need to be relayed to the right people to instigate fast, real change.
For over 20 years, Friends of Cancer Research (Friends) has been working to do exactly that, building bridges between patient advocacy groups and drug researchers, developers and regulators to speed up the development, and access to, valuable, lifesaving medicines.
Now, Friends is adding to its already extensive efforts to bring healthcare stakeholders together with the launch of its online platform, ProgressForPatients.org.
The platform equips patient advocates with the knowledge and tools to communicate with regulators and stay informed about healthcare developments, while acting as a vital resource for federal advisory committees, industry and policy makers eager to implement patient perspective into various aspects of their operations.
The first portion of the platform, the Advocacy Education program, is a self-guided online learning platform aimed at educating the patient advocacy community about the nation’s primary regulator, the Food and Drug Administration (FDA).
Once interested patients and advocates are given access to the self-guided course, they learn crucial information about the FDA’s activities, medicine development and regulation to help them understand how and where they can add their input to drive better health outcomes.
After completion, advocates are prepared to offer their perspectives and be a resource for organizations seeking to incorporate patient input into the drug development process. Friends serve as a connector between patient advocates that have completed the course and opportunities for patient input.
ProgressForPatients.org also includes the Advocacy Alliance – a portal for advocacy organizations to stay informed and organize opportunities on the most pressing policy issues, current proposals and national priorities in regulatory science.
“Bringing patients, advocates and the patient advocacy community together is crucial to bringing about change that is not only fast and effective, but valuable to patients,” said Ryan M. Hohman, JD, Vice President of Public Affairs at Friends. “ProgressForPatients.org is a complete resource for patient advocates seeking education and opportunities available that can help them engage more with other healthcare stakeholders and do exactly that.”
To find out more about ProgressForPatients.org, visit the site here.