Change Together marking AML World Awareness Day by helping people to “Know AML”

Apr 20, 2018
Change Together marking AML World Awareness Day by helping people to “Know AML”

Acute myeloid leukemia (AML) is the most common form of acute leukemia in adults.1 In 2018, it’s estimated that in the U.S. there will be 19,520 new cases of AML and 10,670 people will die of this disease.2

While we have seen dramatic advances in the treatment of most cancers, AML has lagged behind until recently.3 Before 2017, there had not been a change in the standard therapy for AML in 40 years.3 It’s only in the last year that several new treatments have been approved.3

Importantly, AML isn’t just one disease – it’s made up of multiple subtypes, and this subtype can affect a patient’s treatment and overall outlook.4

In a bid to raise awareness of AML patients’ plight, advocacy and support groups from across the globe will band together under the “Know AML” banner to mark World AML Awareness Day this April 21.

“The mission of Know AML is to drive awareness of AML globally through community collaborations, while continuing to raise awareness of the resources and support currently available,” said the initiative’s organizers.

Change Together will be marking the event by publishing a series of interviews with leading figures from the AML advocacy community, including:

  • Kathleen Weis, CEO, Aplastic Anemia and MDS International Foundation
  • Gwen Nichols, CMO, The Leukemia & Lymphoma Society
  • Brian Tomlinson, Chief Program Officer, CancerCare and Know AML advocate ambassador
  • Gary Nolan, Know AML secretariat member

Our program also includes a live webinar on May 3, which will bring all our contributors together to discuss the AML landscape and advocacy’s role in driving change across therapy areas.

Moderated by Jenny Kite, Senior Stakeholder Engagement Manager at Astellas, the webinar will give the audience the chance to discover the work being undertaken in AML, as well as put questions to the expert panel.

With so much of value in store for patient advocacy groups, we encourage you to keep an eye on Change Together over the coming weeks.

To find out more about the webinar and to register to attend, click here.


References

  1. Mayo Clinic (2018). Leukemia symptoms & causes. Available from: https://www.mayoclinic.org/diseases-conditions/leukemia/symptoms-causes/syc-20374373 (accessed April 2018).
  2. National Cancer Institute (2018). SEER Cancer Stat Facts: Acute Myeloid Leukemia. Available from: https://seer.cancer.gov/statfacts/html/amyl.html (accessed April 2018).
  3. OncLive (2018). Novel Agents Advance Field of AML. Available from: https://www.onclive.com/web-exclusives/novel-agents-advance-field-of-aml (accessed April 2018).
  4. American Cancer Society (2016). How Is Acute Myeloid Leukemia Classified? Available from: https://www.cancer.org/cancer/acute-myeloid-leukemia/detection-diagnosis-staging/how-classified.html (accessed April 2018).
Change Together marking AML World Awareness Day by helping people to “Know AML”

Stakeholder Engagement is a function within Corporate Affairs at Astellas that focuses on creating, building and maintaining third-party relationships. We serve as a conduit between Astellas and external stakeholders to help improve patient outcomes, improve access issues and address patients’ unmet needs head on.

Leave a Reply