LIVE WEBINAR: Engaging with patient communities – tailoring approaches to address unique challenges

Sep 24, 2018
LIVE WEBINAR: Engaging with patient communities – tailoring approaches to address unique challenges

September is Prostate Cancer Awareness Month and to mark the occasion Change Together is running a series of articles with leading figures from the advocacy community. We’ll be sharing inspiring stories about the great work being done to improve the outcomes and quality of life for men with prostate cancer.

Stories that we’ll be publishing include:

  • Jamie Bearse, CEO of ZERO – The End of Prostate Cancer, explains how his organization has been raising funds and engagement through nationwide run/walk events
  • Thomas Farrington, President and Founder of the Prostate Health Education Network, shares how his organization is tackling the vital issue of increasing African American men’s participation in clinical trials
  • Chuck Strand, CEO of Us TOO International, on his group’s work leading a network of more than 200 prostate cancer support groups across the United States
  • A roundup of the articles Change Together has published on prostate cancer over the past two years including advocacy stories, research rundowns and hints and tips
  • A look at what advocacy groups are doing on social media for Prostate Cancer Awareness Month and what we can learn from this

To conclude the month, we will be presenting a live webinar with a panel of experts to discuss communication and engagement, and the different approaches advocacy groups can take to address the unique challenges of their communities.

This webinar will be helpful for all advocates, not just those working in prostate cancer, as we hear and learn from our expert panel how their organizations are bringing about change.

The live webinar takes place on Thursday, October 11 at 11.00 am EST / 10.00 am CT. To register for the webinar, please click on the button below. If you’re not able to make the live event, register and you can watch the recorded version at a time and place that suits you.


Panelists

Jamie Bearse, CEO, ZERO – The End of Prostate Cancer

As President & CEO of ZERO – The End of Prostate Cancer, Jamie Bearse is committed to championing the cause while stewarding this leading cancer organization. Bearse has been with ZERO for 16 years and has been a critical member of the leadership team since 2005. He is recognized as the key architect of several of ZERO’s strategic objectives and programs including the ZERO Prostate Cancer Run/Walk, it’s Endurance Team initiative, co-pay relief program, and ZERO360 Patient Navigation. Under his leadership, ZERO has become a four-out-four star rated organization by Charity Navigator and has been named in the Top 50 Best Charities to Work for by the Non-Profit Times for the last four years. During his career, Bearse has built significant partnerships toward ending prostate cancer and has raised more than $150M for prostate cancer research, education and support. He is currently focused on building ZERO’s champion program to empower survivors and families to take an active role in the organization to engage those impacted by the disease. Bearse is also a leader in the medical research advocacy community to establish federal government funding for cancer research and to ease access to care for all patients. Bearse has a certificate in Executive Leadership from Harvard University’s Kennedy School of Government, has done MPA class work at the University of Southern California, and holds a BA from the University of Massachusetts. He’s a black belt in karate, a blogger, and he lives in Boston, MA with his wife and three children.

Thomas Farrington, President and Founder, Prostate Health Education Network

Thomas was diagnosed with prostate cancer in 2000. He describes himself as being completely uninformed about every aspect of the disease, especially his extremely high risk level. During his treatment period, Thomas continued to study prostate cancer and decided that his unsettling experience facing the disease, along with the experiences of other men in treatment with him could help others that would follow them along their journey of hope to beat prostate cancer. In 2003, Thomas founded the Prostate Health Education Network, a Boston, Massachusetts based non-profit organization to focus on the urgent and unmet prostate education and awareness needs of African American men.

Chuck Strand, CEO, Us TOO

As CEO of Us TOO International, Chuck leads initiatives to provide educational resources, support services and personal connections to the prostate cancer community at no charge. In response to unmet or underserved needs of patients, caregivers, and support group leaders, recent content developed includes Us TOO educational events, webcasts, topic-specific web pages, and expanded support services. He leverages his marketing agency experience in rare disease/disorder therapies and pro bono nonprofit work to repurpose FDA-approved drugs as off-label treatments. He also brings experience in consumer relationship marketing through agency account management with Edelman Worldwide and Frankel/Publicis for clients including Apple, Kraft Foods, General Motors and Bayer Healthcare. Chuck began his work with Us TOO International as a volunteer in 2010.

Jenny Kite,  Assistant Director, Stakeholder Engagement, Astellas (moderator)

Jenny is Assistant Director, Stakeholder Engagement at Astellas, leading engagement with advocacy partners to develop long-term mutually beneficial relationships, as well as overseeing internal and external advocacy communications. As part of this role, she manages Change Together, guiding content strategy and working with advocacy groups to share their stories through the website. Jenny joined Astellas in 2008 as a member of the Corporate Communications team. Prior to this, she held various communications and public relations positions. Jenny has a Bachelors in Journalism from Iowa State University and an MBA from Westminster College.

LIVE WEBINAR: Engaging with patient communities – tailoring approaches to address unique challenges

Stakeholder Engagement is a function within Corporate Affairs at Astellas that focuses on creating, building and maintaining third-party relationships. We serve as a conduit between Astellas and external stakeholders to help improve patient outcomes, improve access issues and address patients’ unmet needs head on.

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