Fighting information overload in prostate cancer

Jun 20, 2019
Fighting information overload in prostate cancer

People living with cancer have more information at their fingertips than ever before – but sometimes that can only add to the disorientation many feel at diagnosis.

That’s why the Prostate Cancer Foundation (PCF) has updated its comprehensive, evidence-based prostate cancer patient information for Men’s Health Month.

“Despite increasing optimism about treatment, today’s cancer landscape can be challenging, as patients have access to an unprecedented amount of information,” the 2019 Prostate Cancer Patient Guide observes.

“There are literally millions of cancer-related webpages, blogs, and videos available at your fingertips. But it’s important to acknowledge that this isn’t always a helpful thing.”

A cancer diagnosis can be disorienting and, for many, the overwhelming volume of information available can be more of a burden than an aid, the report adds.

The updated guide consolidates all the available information on contemporary prostate cancer research, treatments and risk factors into one, trusted resource.

“We at PCF work daily on the frontlines of science to find treatments and cures for prostate cancer,” Christine Jones, Chief Operating Officer at the Foundation, notes, “and because of our investments over the past 25 years, we are in a remarkable period where progress for patients is taking place more rapidly than ever before.

Comprehensive information is ‘our duty’

“It is our duty to provide patients with the most comprehensive information available about prostate cancer so that they may have highly informed discussions with their doctors and make the best choices based on state-of-the-art medical research.”

The 84-page updated document, which was first published in 2017, covers everything from general information on what prostate cancer is, risk factors and symptoms, right through to diagnosis and currently available treatment options.

Information on dealing with the psychosocial impacts of living with the cancer, such as mental health and sexual dysfunction, is also included. It also offers advice on genetic risk factors and prevention for family members.

“It is for any man who has been newly diagnosed, is in treatment, or is concerned about a rising prostate specific antigen,” says the PCF in a press release.

“Because prostate cancer is one of the most heritable cancers, the guide includes information for all family members, both men and women, about genetic cancer risks.

“It is also for any caregiver who wants to cut through the information noise and get directly to need-to-know information for prostate cancer patient navigation.”

The 2019 Prostate Cancer Patient Guide has been published alongside Additional Facts for African American Men and Their Families, which attempts to raise awareness of the US’ health disparity in prostate cancer outcomes.

It looks at the risks and issues associated with prostate cancer in African Americans, who are 76 percent more likely to be diagnosed with prostate cancer than their Caucasian counterparts. Black men are also twice as likely to die from the disease than males from other ethnicities.

To read more about PCF’s Additional Facts for African American Men and Their Families click here, or to download the 2019 Prostate Cancer Patient Guide, click here.

Men’s Health Month runs throughout June.

Fighting information overload in prostate cancer

Astellas Patient Advocacy is a function within Corporate Affairs at Astellas that focuses on creating, building and maintaining third-party relationships. We serve as a conduit between Astellas and external stakeholders to help improve patient outcomes, improve access issues and address patients’ unmet needs head on.

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