ON-DEMAND WEBINAR: Knowledge is power – using education and awareness to drive positive change for patients

Apr 23, 2018
ON-DEMAND WEBINAR: Knowledge is power – using education and awareness to drive positive change for patients

April 21 was acute myeloid leukemia (AML) World Awareness Day and to mark the occasion Change Together kicked off a series of articles with leading figures from the advocacy community. People who are working to improve the outcomes and quality of life for patients with this rare aggressive cancer of the blood and bone marrow.

As part of this program, we presented a live webinar on May 3 with a panel of experts to debate how we can drive positive change for patients through education and awareness.

This webinar is aimed at all advocates, not just those working with AML patients, as we learn from our expert panel how their organizations are bringing about change.

The panel and the topics they covered are as follows.

  • Dr. Gwen Nichols, Chief Medical Officer of The Leukemia & Lymphoma Society on coordinating the group’s groundbreaking Beat AML Master Trial, which is taking the latest research from the lab to the clinic.
  • Kathleen Weis, Chief Executive Officer of the Aplastic Anemia and MDS International Foundation, on the changing treatment landscape, which is bringing new hope to patients, and how her group is supporting the AML community.
  • Representatives from Know AML, the global AML awareness initiative established in 2017 – Gary Nolan from the Know AML secretariat and Brian Tomlinson, patient advocate ambassador and Chief Program Officer at CancerCare – explaining how the project started and the role that patient advocates play in it.

The live webinar takes place on Thursday, May 3 at 11.30 am ET / 10.30 am CT. To watch the recorded version, please click here or on the button below.


Webinar panelists

Dr. Gwen Nichols, Chief Medical Officer, The Leukemia & Lymphoma Society

As LLS’s chief medical officer (CMO), Gwen Nichols, M.D., plays a critical role in advancing cures through a unique combination of clinical, academic and pharmaceutical experience. She oversees LLS’s scientific research portfolio, patient services and policy and advocacy initiatives. A physician and scientific researcher, she has dedicated her career to advancing cures for cancers.

Kathleen Weis, Chief Executive Officer, Aplastic Anemia and MDS International Foundation

Prior to being named CEO of AAMDSIF, Kathleen Weis was CEO of the American Red Cross Gold Country Region in Sacramento, California. She previously served the Red Cross in a variety of executive management capacities, including as its Chief Operating Officer in the same western region, which followed her position as Senior Director of Humanitarian/ Information Technology Service Delivery at the organization’s Washington, D.C. headquarters.

Brian Tomlinson, Chief Program Officer, CancerCare and Know AML patient advocate ambassador

Brian Tomlinson directs all aspects of CancerCare’s programs and services, including a staff of professional oncology social workers who provide information, resources and psychosocial support to people with cancer and their loves ones. Mr. Tomlinson also oversees CancerCare’s extensive portfolio of educational programs designed to inform and empower the oncology community to make informed healthcare decisions. In addition, he leads the organization’s national patient assistance programs, which provide direct financial assistance for treatment-related needs.

Gary Nolan, Know AML secretariat member

Gary is a marketing professional who has worked in the healthcare industry for the past 13 years.  He has conceptualized and developed numerous solutions including global advertising campaigns, patient awareness initiatives and cutting-edge digital platforms.

Jenny Kite, Senior Stakeholder Engagement Manager, Astellas

Jenny is responsible for leading engagement with advocacy partners to develop long-term mutually beneficial relationships, as well as overseeing internal and external advocacy communications. As part of this role, she manages Change Together, guiding content strategy and working with advocacy groups to share their stories. Jenny joined Astellas in 2008 as a member of the Corporate Communications team. Prior to this, she held various communications and public relations positions.

ON-DEMAND WEBINAR: Knowledge is power – using education and awareness to drive positive change for patients

Stakeholder Engagement is a function within Corporate Affairs at Astellas that focuses on creating, building and maintaining third-party relationships. We serve as a conduit between Astellas and external stakeholders to help improve patient outcomes, improve access issues and address patients’ unmet needs head on.

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