Ten tips to get your voice heard in a noisy world

Ten tips to get your voice heard in a noisy world

From social media to traditional communication methods, there’s a lot of ...
Overcoming patients’ language and cultural communication barriers

Overcoming patients’ language and cultural communication barriers

Advocacy groups work to make sure people have all the information they need ...
New FDA will ‘enhance patient perspective in drug development’

New FDA will ‘enhance patient perspective in drug development’

The Federal Drug Agency (FDA) is developing tools to help incorporate the ...
Position on Patient Organization Engagement

Position on Patient Organization Engagement

The Position Statements available here provide additional information regar ...
FDA’s partnership approach to tackling health disparity

FDA’s partnership approach to tackling health disparity

Ensuring minorities are represented in clinical trials and sharing cultural ...
FDA to incorporate more digital technology in healthcare practices

FDA to incorporate more digital technology in healthcare practices

The Food and Drug Administration (FDA) has launched new plans to incorporat ...
Using your website analytics to build better advocacy campaigns

Using your website analytics to build better advocacy campaigns

Advocacy groups can use website analytics to design better campaigns, provi ...
Five quick tips to get your advocacy press release noticed

Five quick tips to get your advocacy press release noticed

When looking for media coverage, sending out a press release can be one of ...
How to make your patient case studies shine

How to make your patient case studies shine

Whether you are raising awareness or lobbying for a change in the law, one ...
Astellas submits comments to the CMS on proposed rule on Contract Year 2019 Policy and Technical Changes to the Medicare Advantage and Part D programs

Astellas submits comments to the CMS on proposed rule on Contract Year 2019 Policy and Technical Changes to the Medicare Advantage and Part D programs

On January 16, 2018, Astellas submitted to the Centers for Medicare and Med ...
How to improve your government relations – no matter the size of your patient advocacy group

How to improve your government relations – no matter the size of your patient advocacy group

Government Relations (GR) is one of the single most important responsibil ...
Optimizing your marketing strategy to improve outreach

Optimizing your marketing strategy to improve outreach

Background The Leukemia Research Foundation (LRF) was founded in 1946 in me ...
Building a collaborative culture in your patient advocacy organization

Building a collaborative culture in your patient advocacy organization

Collaboration is the key to success for any organization. It helps avoid st ...
New FDA triage website will improve dialogue with patient advocacy groups

New FDA triage website will improve dialogue with patient advocacy groups

The Food and Drug Administration’s (FDA) Center for Drug Evaluation and R ...
Five tips for using social media to better reach your patient community

Five tips for using social media to better reach your patient community

As patient advocates, one of our biggest responsibilities is providing stro ...
What’s next for the FDA and patient-focused drug development?

What’s next for the FDA and patient-focused drug development?

The Food and Drug Administration (FDA) is to focus on giving guidance for h ...
Getting the most out of your content development strategy

Getting the most out of your content development strategy

No matter what industry an organization is in, it needs a comprehensive con ...
Making the most of your email marketing

Making the most of your email marketing

Email is one of the most effective marketing channels for advocacy organiza ...
Tips for incorporating health literacy best practices into your patient materials

Tips for incorporating health literacy best practices into your patient materials

Health literacy is important for everyone. All people, at some point in the ...
How to make your website SEO-friendly

How to make your website SEO-friendly

One of the most important aspects of website management today is search eng ...
Five top tips to build your social media presence on a limited budget

Five top tips to build your social media presence on a limited budget

As a patient advocacy group, you are probably using social media channels f ...
Paving the way for patient focused drug development

Paving the way for patient focused drug development

The U.S. Food and Drug Administration (FDA) has delivered a welcome message ...
Changing the value conversation in healthcare

Changing the value conversation in healthcare

In a bid to redefine value from the patient perspective, new guidelines for ...
Empowering patients with the tools to better understand the prescription process

Empowering patients with the tools to better understand the prescription process

Established in 2006, the Alliance for Patient Access (AfPA) is a national n ...
Stakeholder Engagement at Astellas (downloadable brochure)

Stakeholder Engagement at Astellas (downloadable brochure)

Funding and support options available for patient advocacy organizations ...
FDA considering

FDA considering “Office of Patient Affairs” to help integrate patient voice into medical product regulation

The Food and Drug Administration (FDA) is considering the creation of an &# ...
How to be a successful patient advocate

How to be a successful patient advocate

Being a patient advocate is no simple task. On the one hand, you’re havin ...
Newly passed New York Step Therapy Bill will bring better access to critical rare disease medicines

Newly passed New York Step Therapy Bill will bring better access to critical rare disease medicines

On Dec. 30, bill S.3419C/A.2834D – also known as the “New York Step The ...
The Transplant Recipients International Organization (TRIO) post-cancer transplant website

The Transplant Recipients International Organization (TRIO) post-cancer transplant website

Background TRIO is a nonprofit international support organization for the e ...
The Psychosocial Standards of Care Project for Childhood Cancer

The Psychosocial Standards of Care Project for Childhood Cancer

Background Although a significant body of evidence outlines the psychosocia ...
Why it’s critical to ask the right questions during the next phase of health reform

Why it’s critical to ask the right questions during the next phase of health reform

With Members of Congress back at work this week, it’s clear that healthca ...
The era of patient-centered medicine at FDA

The era of patient-centered medicine at FDA

In recent years the U.S. Food and Drug Administration (FDA) has endeavored ...
Astellas support and funding for patient advocacy groups

Astellas support and funding for patient advocacy groups

Astellas is committed to engaging and working with patient advocacy groups. ...
Astellas Statement on 21st Century Cures Act

Astellas Statement on 21st Century Cures Act

Astellas applauds Congress’ passage of the 21st Century Cures Act. We bel ...
Want to effectively communicate your research?

Want to effectively communicate your research?

Whether it’s the latest scientific breakthrough or results from a simple ...
Safeguarding your patient advocacy events

Safeguarding your patient advocacy events

On March 13, 2012, the SHAPE America National Convention and Exposition exp ...
Five top tips to optimize your marketing strategy

Five top tips to optimize your marketing strategy

With the turn of the century came the advent of a host of new platforms des ...
Astellas engages with organ transplant patients to better address their needs at patient-focused FDA meeting

Astellas engages with organ transplant patients to better address their needs at patient-focused FDA meeting

Astellas’ commitment to improving patient lives was exemplified at the 20 ...
Astellas scientist Anne Keating writes about her visit to Capitol Hill and the promise of science

Astellas scientist Anne Keating writes about her visit to Capitol Hill and the promise of science

Last month, Anne Keating, Pharm.D., Vice President of Clinical Science Onco ...
National Health Council develops value model get-ready checklist for patient organizations

National Health Council develops value model get-ready checklist for patient organizations

With ever-increasing weight placed on the value of healthcare treatments an ...
Jim Robinson highlights excitement and promise of medical innovation in Forbes.com

Jim Robinson highlights excitement and promise of medical innovation in Forbes.com

As leaders across healthcare work together to maximize the promise of medic ...
PDUFA VI goals letter released

PDUFA VI goals letter released

On Friday,  July 15, the Food and Drug Administration published the perfor ...
Social media focus: What can we learn from advocacy groups online?

Social media focus: What can we learn from advocacy groups online?

Social media is one of the most effective channels for advocacy groups to c ...
Preparing for the upcoming medical conference season

Preparing for the upcoming medical conference season

The months between September and December, and between May and June, signif ...
Pennsylvania and Alaska governors sign oral chemo parity laws

Pennsylvania and Alaska governors sign oral chemo parity laws

This week, Alaska and Pennsylvania became the 41st and 42nd states in the U ...
Getting the most out of social media at medical conferences

Getting the most out of social media at medical conferences

Using social media around conferences allows you to keep abreast of real-ti ...
Astellas urges the Centers for Medicare and Medicaid Services to reconsider rule on physician incentive payments

Astellas urges the Centers for Medicare and Medicaid Services to reconsider rule on physician incentive payments

On June 27, 2016, Astellas submitted to the Centers for Medicare and Medica ...
Getting the most out of fundraising

Getting the most out of fundraising

Fundraising is an enormously competitive field. In the US there are roughly ...
Position on Expanded Access to Investigational Medicine

Position on Expanded Access to Investigational Medicine

The Position Statements available here provide additional information regar ...
Policy on product safety

Policy on product safety

The Position Statements available here provide additional information regar ...
Position on Access to Health

Position on Access to Health

The Position Statements available here provide additional information regar ...
Policy on stem cell research and development

Policy on stem cell research and development

The Position Statements available here provide additional information regar ...
Policy on disclosure of clinical trial data

Policy on disclosure of clinical trial data

The Position Statements available here provide additional information regar ...
Spotlight on the EveryLife Foundation

Spotlight on the EveryLife Foundation

Background In early 2009, Dr. Emil Kakkis launched the EveryLife Foundation ...
Stakeholders call for new Medicare payment plans to be withdrawn

Stakeholders call for new Medicare payment plans to be withdrawn

Earlier this week, Astellas submitted to the Centers for Medicare and Medic ...
Looking ahead in the states in 2016

Looking ahead in the states in 2016

Elections, budget woes and health care discourse are expected to drive a fu ...
Gerontological Society of America

Gerontological Society of America

Ageism may be leading to ineffective communication with older adults. This ...
Watsi

Watsi

Background Watsi is a global crowdfunding platform that enables anyone to d ...
Tapping real-world evidence to achieve better value in healthcare

Tapping real-world evidence to achieve better value in healthcare

There’s a common saying – “you’re only as good as your data.” In ...
From volume to value - designing a patient-centered health care system

From volume to value – designing a patient-centered health care system

Health care delivery and payment have come a long way… but are they truly ...
Getting the most out of networking

Getting the most out of networking

Many who attended our patient advocacy summit last year reported that they ...
Communicating with older adults

Communicating with older adults

An evidence-based review of what really works ...
Forging a path to outcomes-based high-quality patient care

Forging a path to outcomes-based high-quality patient care

The way we view and work in the health care economy is changing dramaticall ...