The power of peer support

The power of peer support

There’s no overestimating the importance of peer support and patient advo ...
Eligibility and diversity in clinical trials: Shifting the needle

Eligibility and diversity in clinical trials: Shifting the needle

Lack of diversity in research is an issue that transcends therapy areas. It ...
Getting heard in advocacy

Getting heard in advocacy

Getting heard over the noise of more well-known, well-understood disease ar ...
Changing the face of stomach cancer trials

Changing the face of stomach cancer trials

An estimated 10,000 Americans died from gastric cancer in 2015, yet just 0 ...
Advocacy on film: Providing a YouTube education

Advocacy on film: Providing a YouTube education

An estimated 175,000 men will be diagnosed with prostate cancer in the US t ...
Thinking outside the box to engage prostate cancer patients

Thinking outside the box to engage prostate cancer patients

“You have to think outside the box, says Alexandra Scholz, Chief Executiv ...
Advocacy ‘crucial’ to future of rare disease

Advocacy ‘crucial’ to future of rare disease

As understanding of rare disease advances at an ever-increasing rate, it’ ...
HealthyWomen and WebMD launch national initiative to reveal unmet women’s health concerns

HealthyWomen and WebMD launch national initiative to reveal unmet women’s health concerns

While women and their healthcare providers know more about mid-life health ...
NORD 2019: Supporting each other through rare disease

NORD 2019: Supporting each other through rare disease

Delegates at a meeting of the National Organization for Rare Disorders (NOR ...