Working collaboratively provides patient advocacy groups with a louder voice, enabling them to better represent the interests of the people they serve.
That’s the idea behind the Bladder Health Alliance (BHA), which comprises more than 30 patient, physician, and research advocacy groups who collectively work to further their aims.
The BHA, originated in 2013 under the leadership of the Urology Care Foundation, which is the official foundation of the American Urological Association (AUA). Over the years, the Alliance has expanded in scope and size and now collectively works to raise awareness and remove stigmas associated with all conditions impacting bladder health, notes Jessica Bateman, Senior Manager of Patient & Research Advocacy for the AUA.
The BHA, is energized about promoting the hashtag #BladdersMatter during November’s Bladder Health Month. They will also share joint content and highlight weekly themes throughout the month.
Maximize exposure for bladder health
This awareness campaign allows for maximum exposure on social media platforms and throughout the urology community, Jessica says.
The BHA recently convened for its 6th annual roundtable discussion, ahead of Bladder Health Month, to discuss the challenges faced by individuals living with conditions that impact bladder health. “When the group meets in person each year, the topics discussed are centered around current trends in the field of bladder health,” she adds.
“We discuss an array of topics including grassroots advocacy campaigns to improve a patient’s quality of life, mechanisms to address stigma, patient-centered research, and protecting research funding for bladder health conditions,” Jessica points out.
Advice for patient advocacy groups
When asked her advice about engaging additional patient advocacy groups to become involved in the Alliance, she encourages them to “reach out and connect” with any of the Bladder Health Alliance partners or visit resources on the BHM website.
“There is power in numbers. Working collaboratively to promote shared goals strengthens the overall message advocates are working to convey.” There are many opportunities to partner with like-minded organizations who are working to serve the same communities and share consistent messages.”